I’m Emmanuel, and I want to share my journey with lymphedema. It all started back in 2013 when I woke up one morning and found my right foot swollen. I didn’t think much of it until two months later when my left foot started swelling too. That’s when things got really tough.
I tried my first treatment with herbal medication mixed with clay, thanks to my late grandmother’s efforts. But sadly, it didn’t work. Instead, my skin started acting up with warts, dryness, and scarring. I rushed to a small clinic where I tried capsules and injections, but none of them solved my problem.
During the cold or rainy seasons, my lymph nodes in the groin would ache terribly, and my legs would develop big veins, making it almost impossible to walk or stand due to the intense pain. The additional injections and capsules did little to help.
The challenges were endless. I suffered constant fever and chills, and the smell from my feet became unbearable. People would distance themselves from me because of it, and I found myself isolating more and more.
I couldn’t even go to school or pursue any interests because of the pain and discomfort. I took up hard labor jobs like grading tea plantations, but even that was a struggle, often having to ask for breaks due to the pain. I had completely abandoned the idea of wearing shoes. I recall the challenging journey from my home in Fort Portal to Kampala, barefoot, heading to the offices of the Lymphedema Warriors Association. But there was a turning point when I finally received a customized flat shoe. It made a world of difference. However, it wasn’t until I reached the Lymphedema Warriors Association offices and learned about bandaging techniques and other self-care exercises that I truly started to feel a change. With consistent bandaging, my legs began to soften, and the need for constant bandaging gradually decreased.
Now, thanks to the support of the Lymphedema Warriors Association, I’ve learned so much about self-care. From proper bandaging techniques to the right exercises and education, I’ve been able to manage my condition much better. No more smelly feet or painful cracks on my skin.
Being part of the association has also given me a platform to spread awareness about lymphedema and help others going through similar struggles. With their support, I’m hopeful for the future.
Join us in our mission to make a difference in the lives of individuals battling lymphedema and other chronic conditions. Together, we can create a future where everyone has access to the care and support they need to live their best lives
Our mission
To Advocate, Educate, and Support individuals affected with Lymphedema in Uganda.
Vision
To build a supportive community and better life for those affected by lymphedema.